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Newly Diagnosed

Welcome. This section is for you if you are “going gluten-free” because of a gluten problem. This includes if you have:

  • Celiac (coeliac) disease;
  • Gluten sensitivity;
  • Gluten intolerance;
  • Wheat intolerance;
  • The Gluten Syndrome.

(each of these conditions is described)

 

More than one in ten people need to be on a gluten free diet.

 

In this section you can find out the basics from the list of issues.

The Doctor Gluten Project is your online resource to provide you advice and leading edge information. It has been created to assist people who are gluten sensitive and/or wheat intolerant or who suffer from the Gluten Syndrome.



Introduction PDF Print E-mail

 So many people get sick by eating gluten.  Gluten reactions are much more than just celiac disease.  As you are new to the idea of gluten, take a little bit of time to review your diagnosis, make sure that you have had all of the relevant tests.  Then you will be ready to go gluten free.

 I strongly recommend that you have the blood tests (and maybe an endoscopy) BEFORE you go gluten free.


A gluten-free diet is not a fad.  It is a lifestyle.  Gluten free is also crucial for many people to at last feel well again.

I congratulate you on getting this far on your gluten journey.

Best wishes, Rodney Ford.
 
Are you sure of your diagnosis? PDF Print E-mail
Yes, before embarking on your gluten-free journey, I would like you to make sure that you have all of the necessary blood tests and investigations.  This is very helpful for you and your doctor.  The possible diagnosis are as follows:

  • The Gluten Syndrome: gut, nerve and skin problems from gluten.
  • Celiac (coeliac) disease: gut damage caused by gluten (see coeliac section)
  • Gluten sensitivity; symptoms caused by gluten but not gut damage.
  • Gluten intolerance; (another way of saying sensitivity)
  • Wheat intolerance; reactions to wheat proteins other than gluten (unusual).


 Once you have got an accurate diagnosis, then you will be much more compliant and enthusiastic with your gluten-free diet.
 
For example, if you know (by blood tests) that your cholesterol level is high, then you will work hard with your diet to lower your cholesterol level.  But if  you never had a blood test, you will not worry about your cholesterol levels as much.  In fact you probably won’t bother much to alter your diet effectively.  My saying is: “what gets measured gets done”.
 

Please make sure that you get a proper diagnosis.

 
Why should I be Gluten Free? PDF Print E-mail
If gluten is making you sick, then you will not recover unless you go a on a gluten free diet.  The sooner you go gluten free, the sooner you will get well.  If you continue to eat gluten then you might get progressively more unwell.

 
How do you go gluten-free? PDF Print E-mail

Gluten free is easy.  But it takes a few weeks to get into the swing of it.  The first few weeks are the hardest – so stick in there.

We have written a book all about this – it is called “Going Gluten-Free: How to get started”.  It has become a “best seller”.Going Gluten Free Book

 

These are the three steps:

  1.  check out your symptoms (see symptom check list);
  2.  get your blood tests (see blood tests section);
  3.  get your tests interpreted and an accurate diagnosis.

Then, if you are affected by The Gluten Syndrome, then all you need to do is go on a gluten free diet.
 
Are you annoyed about being gluten-free? PDF Print E-mail
After a few months, a lot of people begin to feel a bit annoyed that they “have to “ be gluten free.  It is easy to forget that you had been so unwell and so tired.  It is easy to forget that you had tummy pains and migraines.

If you had the blood tests and/or an endoscopy, then review the results.  Reacquaint yourself about why you are on a gluten-free diet.

 Remember, that you chose to go gluten free.  It is your responsibility.  Gluten free is a lifestyle rather than a diet.

 
Children? PDF Print E-mail
I think that children are the most important group to be protected from the harm of gluten.  I am a paediatrician specialising in gastroenterology and allergy.  In my clinic, I find that a third of all my patients have benefited from a gluten free diet.  This is amazing.  However, these children and their parents can testify to the amazing difference a gluten-free diet has made to their family’s health. In my writing, I am mostly addressing you as a parent.  But everything that I write also applies to children.

It is my experience that children rapidly become accustomed to a gluten-free diet.  They often take up the roll of the “gluten police” and help their parents comply.  They usually eat a very healthy diet once they feel well again and have the gluten removed from their diet.  It is an emotional experience to see these children come back to my clinic well at last.

 
How strict do you have to be? PDF Print E-mail
To start with you should  be as gluten-free as you can possibly achieve – very strict.  However, some people find that they can tolerate the traces of gluten found in some maltodextrins which many people can consume without experiencing any symptoms.

If you have ongoing symptoms, then cut out all traces of gluten.  Look for the hidden sources of gluten. To be on the safe side, keep gluten to the absolute minimum (zero is good).

 
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