The Doctor Gluten Project

Changing what the world eats

Nerve symptoms with gluten - Becky PDF Print E-mail
Written by Dr Rodney Ford   
Saturday, 24 November 2007
Becky writes:

“I was diagnosed with lactose intolerance 2 years ago, and going lactose free settled some of my gastrointestinal problems, but not everything.

I tried going fructose free for a month earlier this year as things like coconut cream and apples upset my stomach. Things were still not right, I was incredibly tired even after a good night’s sleep and had difficulty concentrating.  I would wake with headaches frequently.

I knew there was no medical reason for the tiredness. So I tried going gluten-free as a desperate measure a few months ago and felt less tired within two days.  My fuzzy head disappeared too which meant I could concentrate better.

Then I found your website and read a couple of your books – this all made a lot of sense at this point.  I tried going back on a small amount of gluten after a month and I was back with the tiredness, headaches, stomach upsets.  In addition, when I went back onto a normal amount of gluten, I had marked muscle weakness initially in my legs but frequently my whole body.

At this point I went to my GP to request coeliac blood tests - I'd been tested before, but I wondered if anything had changed after my accident and didn't know if the IgG-gliadin test was one of the previous tests.  My results were:  The results were tTg 0, total IgA 0.77, IgG-gliadin 6 (normal range 0-20).

I really don't understand the numbers in light of the symptoms (I am a scientist by training and am used to dealing with numbers).


Last Updated ( Sunday, 20 January 2008 )
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Melissa - My children get sick with gluten PDF Print E-mail
Written by Dr Rodney Ford   
Saturday, 24 November 2007

Melissa writes:

“I wanted to thank you for your article in the Scott-Free Newsletter on how long it takes children to get celiac disease- see: gluten and the brain.

I am the mom of two, a self-diagnosed celiac, and my oldest was sick for almost a year, and the doctors still didn't see a need for an endoscopy.  I didn't want to wait, while he fell down in the growth charts.  His anemia didn't resolve, and he felt horrible … so I put him on a gluten-free diet and he felt so much better.
Last Updated ( Saturday, 26 January 2008 )
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Roger - Gluten caused depression PDF Print E-mail
Written by Dr Rodney Ford   
Tuesday, 23 October 2007

Roger writes:

“I am now 73.  When I was a teenager, a doctor put me on an elimination diet to check if I had the allergy to milk that he suspected.  He was right.

When I was 50, I gave up smoking but with great difficulty.  I was told by another allergy specialist (Dr Bruce Duncan) that this was because I was intolerant to wheat.  So I went "wheat free" but this didn't help much.


Last Updated ( Saturday, 26 January 2008 )
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Another delayed diagnosis PDF Print E-mail
Written by Dr Rodney Ford   
Tuesday, 28 August 2007

Cynthia writes: “23 yrs ago I started having these health problems but my doctor just said it was stress.  But 3 yrs ago I read that celiac disease the most misdiagnosed disease.  Well that was me!  It also was affecting my mother.  I went back to my doctor to get the blood work.  It came back positive - I had it!  Then the biopsy showed that I had total villus atrophy.  Wasn’t I slow to be diagnosed?!  I am now worried about my 16 year old daughter".

Last Updated ( Monday, 10 December 2007 )
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Katrina - Headaches from touching gluten PDF Print E-mail
Written by Dr Rodney Ford   
Wednesday, 11 April 2007
Katrina asks: “Hi, I received my biopsy results yesterday – this confirmed coeliac disease.

I work in a supermarket part-time in the bulk foods department.  So I am handling food (with gloves on) which contains gluten.  I find that I get a sore throat & headaches more when I am at work. Could this be linked?  Or is working near the bakery enough to cause a problem?

By the way, I went to work last night (after 4 days off) & got a sore throat &  headache not long after being there so will start job hunting. Thank you for your interest, Katrina.”

Last Updated ( Saturday, 26 January 2008 )
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